Forty years ago, there was very little awareness of rare diseases like pyruvate kinase (PK) deficiency. When Tamara was diagnosed as a child, doctors did they best that they could at the time to manage her care. In this short clip, she shares what it was like at the time being diagnosed with a widely unknown condition. For Tamara, sharing her story is an important way to help heighten awareness of this rare hemolytic anemia. To learn more about PK deficiency, please visit www.knowpkdeficiency.com
©2019 Agios
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